01650nas a2200289 4500000000100000008004100001260005300042653002200095653003900117653003300156653002000189100001500209700002000224700001100244700001500255700001400270700002000284700001300304700001300317700001600330700001200346245009400358856014200452300000800594520074400602022001401346 2026 d c01/2026bSpringer Science and Business Media LLC10aLived experiences10aNeglected tropical diseases (NTDs)10aPeople with lived experience10aHealth research1 aFastenau A1 aOnyima-Esmai AS1 aKpeh B1 aAssakin JM1 aZaizay EG1 aUnterkircher SC1 aWillis M1 aVettel C1 aWainstock D1 aEgino I00aIncorporating lived experience of neglected tropical diseases strengthens health research uhttps://deleprastichting-my.sharepoint.com/:b:/g/personal/e_williams_infontd_org/IQADuykzLFqNSr8iC5Sh9rg5AX8XoPfQ3PPGuE-GYZQKtdk?e=nPwjF0 a1-23 a
Neglected tropical diseases (NTDs) affect over a billion people globally, primarily from the most vulnerable and marginalized communities. Despite this immense disease burden, research on NTDs has historically been dominated by external actors, researchers, policymakers and funders, and has often been disconnected from the daily realities of those most affected. However, as global health systems increasingly emphasize equity, decolonization and person-centred care, fostering inclusive and participatory equitable research in NTDs is no longer optional: it is essential. Several authors of this Correspondence are people affected by different NTDs, who bring vital perspectives shaped by direct experience and lived realities.
a3005-0693