02679nas a2200229 4500000000100000008004100001653004100042653001500083653007600098653002300174100001300197700001700210700001700227700001300244700001400257700001400271700001600285245015600301856003800457490000700495520194700502 2016 d10aCommunity based rehabilitation (CBR)10aEvaluation10aInternational Classification of Functioning Disability and Health (ICF)10aMonitoring methods1 aMadden R1 aLukersmith S1 aMillington M1 aScarf DC1 aFortune N1 aHartley S1 aLlewellyn G00aParticipatory monitoring of community-based rehabilitation and other disability-inclusive development programmes: the development of a manual and menu. uhttp://dcidj.org/article/view/4720 v263 a

Purpose: This paper describes a three-year research project leading to the development of the CBR Monitoring Manual and Menu (MM&M). The MM&M is a practical toolkit that meets the needs of CBR managers and stakeholders, and is consistent with the philosophy of CBR and community-based disability-inclusive development. It is designed to produce meaningful and locally useful information and data, based on international data standards where possible, to enable aggregation at regional, national and international levels.

Methods: Five complementary workstreams of research were carried out from 2011 to 2014: 1) literature review and analysis; 2) participatory action research with CBR stakeholders; 3) analysis and refinement of validity of concepts and structures; 4) consultation and review; and 5) synthesis of results. This article documents the method and key results of each of the five workstreams, and the lessons learned along the way.

Results: The MM&M is now freely available on-line at http://sydney.edu.au/health-sciences/cdrp/projects/cbr-monitoring.shtml. Collaboration among members of the development team continues, chiefly via an on-line group to which new members have been welcomed.

Conclusion and Implications: At the time of writing, the MM&M is the only international monitoring product, known to the authors, that consciously sets out to reflect both a ‘bottom- up’ and ‘top-down’ perspective of monitoring information and data. To achieve this for a complex programme such as CBR, and to align with its principles, it was essential to use a multi-component and multi-stage strategy for tool development, involving a diverse multidisciplinary team includingcollaboration with CBR stakeholders.