02906nas a2200373 4500000000100000008004100001260001200042653009000054100001300144700001900157700001500176700001500191700001400206700001400220700001300234700001900247700001500266700001600281700001500297700001600312700001400328700001900342700001600361700001500377700001200392700001500404700001200419245010500431856008600536300000800622490000600630520188200636022001402518 2021 d c01/202110aNeglected tropical diseases; data systems; decision-making; use cases; data solutions1 aGrubin L1 aBalachandran L1 aBartlett S1 aBiritwum N1 aBrooker S1 aFleming F1 aKollie K1 aMatendechero S1 aMengistu B1 aMuehleman T1 aMwingira U1 aPartridge B1 aPavluck A1 aRebollo Polo M1 aTezembong M1 aTreatman D1 aYeary R1 aZoerhoff K1 aZoure H00aImproving data use for decision making by neglected tropical disease program teams: eight use cases. uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8666716/pdf/gatesopenres-5-14661.pdf a1530 v53 a

The achievement of neglected tropical diseases (NTDs) program goals depends on numerous factors, including the ability of national programs to use high-quality, timely data to inform their decision-making and program delivery. This paper presents a use case analysis of the routine data used by national NTD programs targeting lymphatic filariasis, onchocerciasis, schistosomiasis, soil-transmitted helminthiasis, and trachoma. The use cases were developed through a combination of secondary and primary research focused on both global trends and deep dives into Burkina Faso, Ethiopia, and Tanzania. Results were refined through a stakeholder convening and the final eight use cases were determined through iteration and prioritization with stakeholders. Eight use cases were developed: improve treatment register data quality, strengthen supervision of drug distributors during mass drug administration (MDA), generate accurate community-level population data for MDAs, create and manage an accurate inventory of drugs, meet district coverage targets during MDA campaigns, feedback and performance to sub-district teams, feedback on performance to sub-national teams, and national-level program use of data for evaluation and decision making. Each use case identifies key actors and their data-related needs and critical challenges, defines the current and desired state, and articulates the profile of a solution (digital and non-digital) needed to complete the use case. The systematic strengthening of data use for decision-making in NTD programs is key for reaching the 2030 Roadmap goals. Integrated together, the presented use cases, when translated into action using appropriate and innovative solutions, can help to ensure that accurate and timely data are present at every step of a program and empower countries to use these data to make program decisions.

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