TY - JOUR KW - Chronic Disease KW - Morbidity KW - Disability KW - Sudan KW - Mycetoma KW - Neglected tropical diseases (NTDs) KW - Quality of Life KW - Public Health KW - Physiotherapy AU - Mustafa Abbas AU - Peter Siordet Scolding AU - Abubaker Ahmed Yosif AU - Roa Fath EL Rahman AU - Melka EL-Amin AU - Mohamed Kamal Elbashir AU - Nora Groce AU - Ahmed Hassan Fahal AU - Joseph Vinetz AB -

Mycetoma is a neglected tropical disease endemic in tropical and subtropical countries, particularly Sudan. The disease is characterised by the triad of painless subcutaneous mass, multiple sinuses and discharge that contain grains. It is a chronic, debilitating disease most commonly affecting the feet or hands and leads to substantial morbidity, loss of function and even amputation. It predominantly affects poor, rural populations and patients typically present late with advanced disease and complications. In this descriptive cross-sectional study, we characterise the disabling consequences of mycetoma. The study included 300 patients.

This is the first study evaluating the disabling consequences of mycetoma and shows clear areas for intervention and further research. Options for mitigating social and economic impacts include routine integration of analgesia and physiotherapy into treatment protocols, and adapting educational provision and working practices based on disability assessment. Our data show that mycetoma is a public health issue with direct implications on quality of life.

LA - eng N2 -

Mycetoma is a neglected tropical disease endemic in tropical and subtropical countries, particularly Sudan. The disease is characterised by the triad of painless subcutaneous mass, multiple sinuses and discharge that contain grains. It is a chronic, debilitating disease most commonly affecting the feet or hands and leads to substantial morbidity, loss of function and even amputation. It predominantly affects poor, rural populations and patients typically present late with advanced disease and complications. In this descriptive cross-sectional study, we characterise the disabling consequences of mycetoma. The study included 300 patients.

This is the first study evaluating the disabling consequences of mycetoma and shows clear areas for intervention and further research. Options for mitigating social and economic impacts include routine integration of analgesia and physiotherapy into treatment protocols, and adapting educational provision and working practices based on disability assessment. Our data show that mycetoma is a public health issue with direct implications on quality of life.

PY - 2018 T2 - PLOS Neglected Tropical Diseases TI - The disabling consequences of Mycetoma. UR - https://journals.plos.org/plosntds/article/file?id=10.1371/journal.pntd.0007019&type=printable ER -