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  • NTDs [14]
    • Buruli ulcer
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  • Cross-cutting issues [10]
    • Data management & analysis [3]
      • Data collection and reporting
      • Mapping
      • Indicators
    • Integrated skin and wound management
    • Management of disease complications [2]
      • Medical management
      • Surgical management
    • Prevention of disability [4]
      • Eye care
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      • Health education
      • Disability measurement
    • Physical rehabilitation [3]
      • Physical therapy
      • Orthopaedic footwear
      • Protheses, walking devices and wheelchairs
    • Stigma and mental wellbeing [1]
      • Mental wellbeing project mapping
    • Inclusion [2]
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      • Access to water and sanitation
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    • Health systems factors
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  • Toolkits [5]
    • Guides on Stigma and Mental Wellbeing [5]
      • Guide 1. What are health-related stigma and mental wellbeing? [8]
        • 1. What is stigma?
        • 2. Why does stigma exist?
        • 3. What are the causes of stigma?
        • 4. Who stigmatises?
        • 5. How does it feel to experience stigma?
        • 6. What are the effects of stigma?
        • 7. Effects of stigma and discrimination on mental wellbeing
        • Annex Guide 1
      • Guide 2. How to reduce the impact of stigma [7]
        • 1. From undetected disease to diagnosis to support
        • 2. Individual-level interventions
        • 3. Group-level interventions
        • 4. Family-level interventions
        • 5. Referral
        • 6. Further reading
        • Annexes Guide 2
      • Guide 3. How to reduce sources of stigma [6]
        • 1. Background to the design of a stigma-reduction intervention
        • 2. Identifying the sources of stigma
        • 3. Targeting an intervention
        • 4. Inclusion of affected persons and champions in interventions
        • 5. Interventions by source type
        • Annexes Guide 3
      • Guide 4. How to assess health-related stigma and mental wellbeing [9]
        • 1. What is the purpose of the assessment?
        • 2. What approach would best fit your purpose and context?
        • 3. Quantitative assessment methods
        • 4. Qualitative assessment methods
        • 5. Assessments using mixed methods
        • 6. Developing qualitative methods from scratch
        • 7. How do you conduct a stigma assessment?
        • 8. How to interpret and report your findings
        • Annexes Guide 4
      • Glossary
    • Perception Study Toolkit (PST)
    • NTD Morbidity and Disability Toolkit [15]
      • CHIEF
      • Clinical Profile
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      • EMIC-CS Community Stigma
      • Participation Scale
      • Patient Health Questionnaire (PHQ-9)
      • 5-Question Stigma Indicators
      • Salsa Scale
      • SARI Stigma Scale
      • SDS Social Distance Scale
      • SRQ Self-reporting Questionnaire
      • Warwick-Edinburgh Mental Wellbeing Scale (WEMWBS)
      • WGQ Washington Group Questions
      • WHODAS
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  • Leprosy (Hansen disease) (35)
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108 items

Publication

Mental distress and health-related quality of life in gambiense human African trypanosomiasis: a case–control study in the Democratic Republic of Congo

Mudji J, Ackam N, Amoako YA, et al. Oxford University Press (OUP). Transactions of The Royal Society of Tropical Medicine and Hygiene. 2022;

Publication

Scabies affects quality of life in correlation with depression and anxiety

Yıldırım SK, Öğüt ND, Erbağcı E, et al. Research Square Platform LLC. 2022;
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Publication

Health-related quality of life and associated factors among Onchocerciasis patients in southeast Nigeria: A cross-sectional comparative study

Otache AE, Ezenwosu IL, Ossai EN, et al. Public Library of Science (PLoS). PLOS Neglected Tropical Diseases. 2022; 16 (2) : e0010182.
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Publication

Health-related quality of life impact of scabies in the Solomon Islands

Lake SJ, Engelman D, Sokana O, et al. Oxford University Press (OUP). Transactions of The Royal Society of Tropical Medicine and Hygiene. 2021; 116 (2) : 148-156.
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Publication

Effectiveness of self-care interventions for integrated morbidity management of skin neglected tropical diseases in Anambra State, Nigeria.

Eze C, Ekeke N, Alphonsus C, et al. BMC public health. 2021; 21 (1) : 1748.
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Publication

Mental health and quality of life burden in Buruli ulcer disease patients in Ghana.

Amoako YA, Ackam N, Omuojine J, et al. Infectious diseases of poverty. 2021; 10 (1) : 109.
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Publication

The impact of podoconiosis, lymphatic filariasis, and leprosy on disability and mental well-being: A systematic review.

Ali O, Mengiste A, Semrau M, et al. PLoS neglected tropical diseases. 2021; 15 (7) : e0009492.
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Publication

Quality of life in patients with Chagas disease and the instrument used: an integrative review

Baldoni NR, Quintino ND, Alves GCS, et al. FapUNIFESP (SciELO). Revista do Instituto de Medicina Tropical de São Paulo. 2021;
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Publication

Instruments used to assess quality of life of older adults in African countries: a scoping review

Attafuah PYA, Everink IHJ, Halfens RJG, et al. Springer Science and Business Media LLC. BMC Geriatrics. 2021;
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Publication

Evaluation of a self-help intervention to promote the health and wellbeing of marginalised people including those living with leprosy in Nepal: a prospective, observational, cluster-based, cohort study with controls.

Shrestha D, Napit I, Ansari S, et al. BMC public health. 2021; 21 (1) : 873.
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Publication

Quality‐of‐life outcomes after operative management of primary and secondary lymphoedema: a systematic review

Tang NSJ, Ramakrishnan A, Shayan R. Wiley. ANZ Journal of Surgery. 2021;
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Publication

Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study.

van 't Noordende A, Pereira Z, Biswas P, et al. PLoS neglected tropical diseases. 2021; 15 (4) : e0009329.
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Publication

Revised estimates of leprosy disability weights for assessing the global burden of disease: A systematic review and individual patient data meta-analysis.

Chandran S, Tiwari A, Lustosa A, et al. PLoS neglected tropical diseases. 2021; 15 (3) : e0009209.
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Publication

A family-based intervention for prevention and self-management of disabilities due to leprosy, podoconiosis and lymphatic filariasis in Ethiopia: A proof of concept study.

van 't Noordende A, Aycheh M, Tadesse T, et al. PLoS neglected tropical diseases. 2021; 15 (2) : e0009167.
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Publication

Surgical debulking of podoconiosis nodules and its impact on quality of life in Ethiopia

Enbiale W, Verdonck K, Gebeyehu M, et al. Public Library of Science (PLoS). PLOS Neglected Tropical Diseases. 2021; 15 (1) : e0009053.
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Publication

Snakebite steals millions of years of quality life in India.

Arnold C. Nature. 2020;
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Publication

A cross-sectional study to evaluate depression and quality of life among patients with lymphoedema due to podoconiosis, lymphatic filariasis and leprosy.

Ali O, Deribe K, Semrau M, et al. Transactions of the Royal Society of Tropical Medicine and Hygiene. 2020;

Publication

Financial burden impact quality of life among Filarial Pathology Patients

Asiedu SO, Kwarteng A, Amewu EKA, et al. Research Square. 2020;
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Publication

An exploration of family quality of life in persons with leprosy-, lymphatic filariasis- and podoconiosis-related disabilities and their family members in Ethiopia.

van 't Noordende A, Aycheh M, Schippers A. Transactions of the Royal Society of Tropical Medicine and Hygiene. 2020;

Publication

Body location of “New World” cutaneous leishmaniasis lesions and its impact on the quality of life of patients in Suriname

Hu RVPF, Ramdas S, Nieuwkerk P, et al. Public Library of Science (PLoS). PLOS Neglected Tropical Diseases. 2020; 14 (10) : e0008759.
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