Burden of Disability, Poverty, and Unmet Needs Among Persons Affected by Hansen’s Disease: Insights from Antulya Nagar, Pune- A Cross-Sectional Study

Background:

Persons affected by leprosy (PAL) continue to face socio-economic deprivation and unmet health needs despite advances in treatment. Understanding their living conditions, health practices, knowledge, and felt needs is essential for planning effective interventions.

Methods:

A cross-sectional survey was conducted among 138 PAL residing in a resettlement colony. Data were collected on demographic characteristics, housing conditions, health practices, knowledge regarding leprosy, and perceived needs.

Results:

All participants belonged to the Below Poverty Line (BPL) category. Most resided in semi-pakka houses (77.5%), with 60.1% reporting unsafe construction and 46.4% inadequate living space. 73.2% reported no knowledge about the disease causation. The most common felt needs were free medical services (61.6%), housing support (19.6%), and livelihood opportunities (15.9%).

Conclusion:

PAL face multiple vulnerabilities arising from poverty, inadequate housing, risky health practices, and poor disease knowledge. Addressing these requires integrated strategies that combine medical care, health education, livelihood opportunities, and social security measures to improve quality of life and rehabilitation outcomes.