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Caregiver burden in Buruli ulcer disease: Evidence from Ghana

Abstract
Background Buruli ulcer disease (BUD) results in disabilities and deformities in the absence of early medical intervention. The extensive role of caregiving in BUD is widely acknowledged, however, associated caregiver burden is poorly understood. In this paper we assessed the burden which caregivers experience when supporting patients with BUD in Ghana. Method/ principal findings This qualitative study was conducted in 3 districts in Ghana between August and October 2019. 13 semi-structured interviews were conducted on caregivers of BUD patients in the local language of Twi. Data was translated into English, coded into broad themes, and direct content analysis approach was used to analyse results. The results show the caregivers face financial, psychological and health issues as a consequence of their caregiving role. Conclusion/ significance This study found significant caregiver burden on family members. It also highlighted the psychological burden caregivers experience and the limited knowledge of the disease within endemic communities. Further research is needed to quantify the caregiver burden of BUD at different economic levels in order to better understand the impact of possible caregiver interventions on patient outcomes.

More information

Type
Journal Article
Author
Amoako YA
Ackam N
Omuojine J
Oppong MN
Owusu-Ansah AG
Abass MK
Amofa G
Ofori E
Frimpong M
Bailey F
Molyneux DH
Phillips RO
Fuller C
Year of Publication
2021
Journal
PLOS Neglected Tropical Diseases
Volume
15
Issue
6
Number of Pages
e0009454
Language
eng
ISSN Number
1935-2735
DOI
10.1371/journal.pntd.0009454
Publication Language
eng